Chronic illness = more communication
Families facing chronic illness face constant worries about treatments, lifestyle adjustments, dealing with the medical establishment, finances, changes in regimens or routines not to mention dealing with serious medical events themselves. And communication gets especially tricky when children enter the picture. JustGotDiagnosed.com, a Web-based service focused on providing health resources for patients, has developed a set of best-practice guidelines designed to improve communication and reduce stress for families dealing with chronic illness.
"Parents always need to keep in mind that children hear and observe, even when you think they don't," said Gary McClain, Ph.D., president and CEO of JustGotDiagnosed.com. "Children often hear and overhear things you
might be trying to keep from them. When it comes to chronic illnesses, the best option is to be as open as possible about what's happening, whether it's to the child itself, or another family member."
Children often hold back on expressing what they fear will cause their parents to become upset, but those unspoken thoughts and feelings don't just evaporate away. In fact they can lead to lead to assumptions and
distortions that are far more serious than the situational reality. According to McLain it's extremely important that parents are clear with their own feelings, so they can be open to their kids' feelings. "Don't forget that all
children in the family are affected by chronic conditions, so bring them into the discussion," McLain said. "They are dealing with the same issues and will also need some adult guidance."
There are many impediments to open communication when it comes to talking to children and others about chronic conditions. These "elephants in the room" include feelings of anger, guilt, grief, helplessness and fear. To
help foster healthy family communications, JustGotDiagnosed.com offers several tips for communicating with family members especially children in households where a member has chronic illness. They include:
1. Practice listening and show off what you learned
2. Encourage children to develop their own coping skills
3. Offer guidance, but also allow for discussion
4. Be a role model
5. Create family routines and rituals, because regular routines reduce stress wake-up, mealtimes, etc.
6. Routines should be predictable and consistent
7. Rituals holidays, weekends, vacations should allow for all family members to participate equally, based on their strengths
8. Always offer choices and explain boundaries
9. Where possible, allow for some choices in routines, healthcare, diet, which will provide a sense of control
10. Explain your boundaries and listen to the other side, too
11. Teach children to be their own advocates
12. Teach kids to deal with questions and comments from friends, teachers and other adults
13. Role play in a way that is comfortable and affirming, which might mean talking about "what is" rather than what "should be"
14. Don't let any elephants (i.e., unstated secrets) hide around the house without exposing and discussing them openly
"Above all family caregivers need to learn how to show themselves as much compassion as they do the person they are caring for and the children in the home," McClain said. "When people are caught up in their own unrecognized feelings, that's what they end up communicating to others. It's crucial to keep in mind that we communicate not only through words, but also through our actions and our emotions."
Founded and developed by Dr. Gary McClain, JustGotDiagnosed.com is an insightful Web resource expressly designed to help patients come to terms with the diagnosis of serious illness. The information provided on the site helps visitors better understand their own, their loved ones', or their patients' emotional state of mind, so they can make clearer and more reasoned decisions about their ongoing health, welfare and treatment plans. Visit http://justgotdiagnosed.com.